About Type 1 Diabetes Distress Scale (T1-DDS)
DIRECTIONS: Living with type 1 diabetes can be tough. Listed below are a variety of distressing things that many people with type 1 diabetes experience. Thinking back over the past month, please indicate the degree to which each of the following may have been a problem for you by circling the appropriate number. For example, if you feel that a particular item was not a problem for you over the past month, you would circle “1“. If it was very tough for you over the past month, you might circle “6“.
1. Feeling that I am not as skilled at managing diabetes as I should be.
2. Feeling that I don’t eat as carefully as I probably should.
3. Feeling that I don’t notice the warning signs of hypoglycemia as well as I used to.
4. Feeling that people treat me differently when they find out I have diabetes.
5. Feeling discouraged when I see high blood glucose numbers that I can’t explain.
6. Feeling that my family and friends make a bigger deal out of diabetes than they should.
7. Feeling that I can’t tell my diabetes doctor what is really on my mind.
8. Feeling that I am not taking as much insulin as I should.
9. Feeling that there is too much diabetes equipment and stuff I must always have with me.
10. Feeling like I have to hide my diabetes from other people.
11. Feeling that my friends and family worry more about hypoglycemia than I want them to.
12. Feeling that I don’t check my blood glucose level as often as I probably should.
13. Feeling worried that I will develop serious long-term complications, no matter how hard I try.
14. Feeling that I don’t get help I really need from my diabetes doctor about managing diabetes.
15. Feeling frightened that I could have a serious hypoglycemic event when I’m asleep.
16. Feeling that thoughts about food and eating control my life.
17. Feeling that my friends or family treat me as if I were more fragile or sicker than I really am.
18. Feeling that my diabetes doctor doesn't really understand what it's like to have diabetes.
19. Feeling concerned that diabetes may make me less attractive to employers.
20. Feeling that my friends or family act like “diabetes police” (bother me too much).
21. Feeling that I’ve got to be perfect with my diabetes management.
22. Feeling frightened that I could have a serious hypoglycemic event while driving.
23. Feeling that my eating is out of control.
24. Feeling that people will think less of me if they knew I had diabetes.
25. Feeling that no matter how hard I try with my diabetes, it will never be good enough.
26. Feeling that my diabetes doctor doesn't know enough about diabetes and diabetes care.
27. Feeling that I can’t ever be safe from the possibility of a serious hypoglycemic event.